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"Making milk kefir from OLD grains" --- Surprise new plot twist

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So there I was, happily playing with all my new SCOBYs; in addition to the kefir that had been in limbo in the back of my fridge for a year (for anyone interested in that story, please see the thread "Making milk kefir from OLD grains" posted about a month ago) I had purchased some tibicos that multiplied so quickly that I was able to trade some of them for fresh milk kefir grains which I kept and fed separately from the original ones so I could do some comparison. I was drinking the kefir, making cheese, drinking and otherwise using the whey, supplying 5-7 people per day with carbonated fruit-flavored beverages from the tibicos...
And then. About 4 weeks ago, Tues, May 10th to be exact, at about 7 in the evening, I noticed a niggling little pain below my right breastbone. Within a half hour, I was feeling as if someone had blown up a beachball in the middle of my chest. I was sure I was having a heart attack. My husband rushed me to the ER where it turned out that my heart was fine, but that I had acute pancreatitis. I spent 2 weeks in the hospital, most of the time in the kind of pain I did not know could exist, and I am a lady who delivered 4 children au naturel. I was sort of the hospital mystery, because A) I am not an alcoholic, B) I do not have gallstones, C) I did not recall any recent trauma to my abdomen, and D) I had not recently traveled to a part of the world where I might have been stung by a scorpion. Apparently these cover most of the known possible causes of pancreatitis. But wait! I was culturing and drinking my own probiotics? Aha! That must be it! At least, that is what some of the docs decided. My husband, on the other hand, did some research on the good ol' interwebs, and found some study where probiotics were actually used as treatment for pancreatitis.

Even though I was discharged 2 weeks ago, I am still not more than barely functional. I am as weak and wobbly as a half-drowned kitten, and still in almost constant pain. I'm told that recovery from acute pancreatitis can take up to 6 months, and that relapses are not that uncommon. Frankly, I'm desperate and terrified, and don't know what to do. Any of you out there ever heard of anything like this? Any words of advice? Encouragement? Please don't stint if you do, I really am in desperate need of it.

Oh, and by the way, about three days after I had been admitted, my husband wanted to know if he should be doing anything about all those bottles of culture that were sitting on the kitchen counter. I told him to just put them all in the fridge. And that's where they've been since. Not sure what I should be doing about them, I'm not physically capable of doing anything about them anyway. I actually am really missing being able to drink my tibicos soda, but I'm also really afraid that maybe that did have something to do with all this.

people who respond to this, I really appreciate it. If I don't answer you right away, it's because sitting up to use my laptop is still a very limited-time activity.
Thank you all so much,
Posts: 1764
Location: RRV of da Nort
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For what it's worth, a sister of mine drinks and eats a lot of counter-top ferments and has never been healthier. Any possibilities given the descriptions below? Also, starting with tick season and going through mosquito season(s) we figure we've been exposed to the gamut of northern insect-borne pathogens.
[Thumbnail for Pancreatitis.JPG]
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Is it possible that you could have an autoimmune condition? I have read that people with autoimmune disorders should limit their kefir intake becauses certain strains of the pathogens can make their condition worse.. idk.. ony thing I can think of.
Sorry you are having such a hard time, my last couple of years have been awful health-wise so I can relate!

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