the best thing for me in fighting cancer: community

I salute you sir and i apologise for being of no use to you

You are in are hearts and prayers.  When I first found you you talked about making your place where someone similar could go and get better.  It was one of the many wonderful things you talked about that I have always inherently believed in.  That brought and kept me here.  You got this!!!  Sometimes life gives you nudges, and sometimes it kicks you hard, but either way it's what you do with it that matters.  You have brought alot of people down an awesome road on this journey of yours. I look forward to many more years of being able to tag along on your journey.  Love n prayers from north central nevada

Thanks for sharing, Paul.

It is a really brave thing to come out and admit that you are unwell, particularly when you thought you should be well. There are lots of things I could say, and I may still do so in your private forum, but for now, this may be of help.

Kelly Turner, Ph.D., founder of the Radical Remission Project, is the author of a remarkable book called Radical Remission: Surviving Cancer Against All Odds. She surveyed hundreds of cancer survivors to find out what they did, and came up with a list of around 100. However, there were 9 things that they ALL did:

   • Radically changed their diet
   • Took control of their health
   • Followed their intuition
   • Used herbs and supplements
       ◦ Herbs and supplements - help clear out the body (detox)
       ◦ Herbs and supplements - boost the immune system
       ◦ Herbs and supplements - help with relaxation and meditation/prayer
   • Increased positive emotions (An attitude of Gratitude)
   • Embraced social support
   • Deepened their spiritual connection
   • Have strong reasons for living

You may be doing most of these already. You also have our prayers.

All credit to you Paul for doing it your way fighting the parasite(s) Tommy.
All I can say is that I strongly believe in not following any general medical practice. Malpractice is the most common way to go.

Only find information from that which has been censored. There is good reason why it has been censored. And there are several ways to fight cancer.
Just like growing plants, T needs his environment to be right for growth. Organic is one way to change access to energy and acid.

Code words and vague help, isn't this a wonderful world we live in?

Best of luck in the fight, Paul!

Bonjour Paul,
thank you for sharing. It is sooo good to hear that changing your diet has such a great impact on your health.
I hope you feel lighter too.
You are asking for help and it is not so clear to me what kind of help you need. I have not had cancer in my life until now but I am in the realm of natural life, permaculture, meditation and healing.

My experience is that thoughts and emotions also have a big impact on the body. For a while I used to do urine therapy. Have you heard of it? You drink a part of your own urine. As I am a vegetarian, vegan even, my pee normally tasted just like vegetable water, the water that you are left with when you steam vegetables.
But on a day when I was angry the day before, the taste of the pee was totally different, same as when I had eaten chocolate the day before. The taste was less sweet and kind of acid, it was a bad taste.
Our thoughts and emotions have a lot of impact on the health of our bodies. I feel.
Most of us can do a lot of improvement in this domain. Negative thinking is so common that we may not even be aware of it. I catch my self so many times even though I am already busy with it for years. Does this approach interest you?

You are very brave to share with us all. I love the connection you make between healing and community. The sharing, the giving and receiving in community is such a powerful force for healing.
At the same time this opens us up to our own vulnerability.
And this could be a very important part of the healing process. Being in touch with our own vulnerability.
Opening up to it. Most;ly we would want to push it away, I'd say.

Thank you for opening this subject! There is always healing to do in everybody's life.
I feel inspired to step up my own awareness and dedication to getting real well.
Many blessings to you!

I am reading some inspiring books:
Radical Remission by Kelly Turner. Maybe you know it already?
Blessed with a Brain Tumor by Will Pye.
And this one I just came across:  Healing the Angry Brain by ronald potter-efron.
The first and last ones are available on www.pdfdrive.com. There you can download a lot of books for free. IT is a super site if you like reading!

I cannot go behind the paywall. I do not live in America. I do not really know what a paywall is but it does not sound very inviting to me. So I don't mind.

Thank you, again!
Take care.
Love, light and laughter,
Sat Atma

Yes, #metoo

I found it an incredible weight loss regimen and I found blessings above and beyond.

Diet helped, exercise helped

Also it's b.s about genetics and Bruce Lipton will explain why.

I'm only a message away as one thing I do is doula .. I help people navigate cancer and other dis-ease.

Glad you made friends with Tommy and are sharing the love.

Sending love and hugs
Mamabear

Paul, I'm sorry to hear this. I'm afraid about all I can off is verbal support and prayers.  But they are both yours.

I’d like to offer a thing. Maybe it is helpful. Maybe it is unwelcome. Dunno.

I have recently fallen in with people who have an interesting belief. I’d never heard of it before. I started to try it and it drastically improved my health. It’s also a huge budget cut for groceries.

They say (and I now agree) that “vitamin A” is not a vitamin but is instead a poison. By eliminating all sources of plant and animal VA from the diet (a little trickier that it sounds), we can start a massive detox and heal everything. My family of 12 (all ages) has all had their health troubles turned around and in the larger community, everything, including cancer, completely cured.

This is not so much a recommendation as a lead into yet another potential location of a root cause.

In order to be clear and specific, I will list the categories of food I no longer can consume:
Pasteurized dairy, liver and other organ meats, pork, marrow, egg yolks, orange and yellow vegetables and fruits, dark green vegetables, tomatoes.

There’s more to the story, but this is a “share of-experience” for the general benefit.

Paul, congratulations on your bold moves. You are setting an example for all.

Anna, now THAT'S a first time I've ever heard of THAT!  Certainly worth looking into.  Fortunately, I'm blessed with good health, but you just mentioned some of my fav foods...carrots, dark green leafy lettuce and pork!  Whew!  Glad you missed chicken and fish!

I'm going to give your suggestion a "go".   Thank you for that share:)

Wow. Well done on what you have achieved so far. The next step is circadian/mitochondrial repair. Look up some Dr Jack Kruse podcasts. He is about decntralising the health system, starting with El Salvador, as bigpHARMa has too much influence.. He believes cancer is mitochondrial dysfunction caused by your environment food/light/water/magnetism). Also it is probably not genetics but epigenetics.

All the best in your journey to recovery.

paul wheaton wrote:I have cancer.  Apparently because genetics. I am using food-as-medicine to get rid of it.  And it seems to be working.

One year ago I learned about Tommy the tumor. My first thought was:  how can *I* possibly have cancer?  My life is very organic.  I was told that because of genetics, this was inevitable.  And that this size and type of tumor has taken about ten years to build up.

I made a lot of changes.  I roped in several of my patreon peeps and recorded a podcast.  I made a private forum (tied to that podcast) where I could talk to folks about details.  

The short version is that I decided to not get the surgery, chemo or radiation.  I decided to take my life from 90% organic to 99.99% organic and shift to foods proven to fight cancer.  Every week I discovered new optimizations.

Now, a year later, I got a new picture of Tommy.  It looks to my untrained eye to be half the size, but I talk to the expert later this month.



I have learned a lot.  I think that if I just simply knew this stuff ten years ago, Tommy would never have existed.  Despite genetics.


A side effect of all this is that I have lost 120 pounds.  And I have experienced a list of other health benefits.  I'm not sure, but I think I might be less bald and less gray - I don't mind being bald or having gray hair, but I do know there are other people care about this sort of thing.  I haven't had a cold or a flu during the last year.  Some skin stuff has cleared up.  


We are changing the kinds of gardens we grow to support this new path.  


I am hopeful and, at the same time, a bit freaking out.  Of course, I have about 50 hours of stuff to say.  I have received a bit of help from friends. And I've had to learn about a hundred times more about self-care than I ever wanted to learn.

My oncologist has been emphatic that I need to step up my game. Now. Today, tomorrow, and get this whole thing wrapped up in the next two to three months.  *My* analysis is that when I am doing this by myself, my game is okay - progress, but not stellar progress.  When people are here supporting me (or doing it with me), my game is strong.  

This is the awkward point.  The reason I decided to share this here.  I was going to simply keep this private until tommy is all gone, but given the need to step up my game, and coming to terms with how I do better with support, I am taking the risk of saying something.  

Awkward, awkward, awkward.  Weird.  Worry. Stress. There is a lot of wisdom in keeping this private.  I hope this gamble has greater upsides than downsides.



I hope that a lot of folks will come do this stuff with me, or support me, over the next couple of months.  

(Uncle Mud is on the phone with me as I write this.  He says I need to discourage people from trying to change my path. Instead, this is a very specific invitation to people who want to be here doing my existing, doctor approved, path with me. I am telling him that some people might wanna eat pizza while they are here helping, but not under the thumb of what I'm doing.  :)  )



During this adventure, a lot of my favorite online resources have disappeared from the internet complete with a message of "censorship." This means that if you want to visit with me about this stuff, you will need to go through a paywall.

https://permies.com/cancer



I can try to answer some questions in this thread, but all of my answers will be brutally vague.  The real answers will be in the private forum on the other side of the paywall.


A few of the threads in the private forum:

- food
- supplements
- more light
- month 6 optimizations
- new pics
- Surgery is canceled
- mitochondria
- the book
- necrosis
- metrics
- the best cure for cancer is community
- things I did two years ago that probably created tommy
- i have lost 120 pounds


I am sharing this because I am hopeful that a lot of people will:

 - cross the paywall and talk to me about all this stuff

 - some of those people will choose to come here (sepper?) and help me step up my game plan


My effort by myself turns out to be not-good-enough.  And I cannot get support in upping my game unless I ask.

Paul, I'm very sorry to hear of your unexpected guest. I am glad your path is serving you well. I am not in a position to offer on site support. Instead I am just sending you all my best wishes, for you to have the full support that you require to make a full recovery.  Blessings on the healing journey.

Well, Paul, I have no cure or advice to offer in this department. I just wish I were near you to give you a big bear hug. Besides, you feel that "it is working", so any changes I might suggest could pull you in the wrong direction.
When, inevitably, there are dark times as you fight against "Tommy", know that there are rewards to living the life you are living: Know that you are a tremendous positive force for good in the world and you are changing many, many lives for the better, one little change at a time. I know that when I pass, I will be better for having known you even from afar in my sandbox in Wisconsin, and this wonderful Permies forum you created. Your gift to us is so much greater!
Consider yourself hugged as often as you need one...

Gee, Paul I know you needed it .. but carrying around Tommy for a couple years really is a horrible weight loss program!
I'm glad to hear that the changes are working .. will check with the missus about releasing funds for breaching paywall ..
But in all cases, congratulations, and keep up the good work!

Hi Paul.
Sorry, I can not jump over a pay-wall. I do have the money, but the way to pay in such cases doesn't work for me. And I can not come over to Montana, no bicycle path from here in that direction (and I do not fly in airplanes anymore, I think they are one of the causes of cancer, or at least many other problems in the world).

I hope my support by 'thinking of you' and understanding why you do what you do will be of help too.
I wish you all strength (mental and physical) you need.
With love,
Inge

I'm in the same bkat as you. Colon cancer with mets to liver and lung.

Don't know if this is of any help ... Biu several times I heard or read about people who had the opinion 'I'd rather die of cancer than using chemotherapy or any pharmaceuticals', but they did choose to have a meaningful life, being in good contact with their friends/family and doing things they loved doing ...

And then the next time they visited the oncologist the cancer seemed to have disappeared!

Do with this information whatever you want. Your choice is yours, not mine.

Paul, I am praying for your strength and those around you who are your help and support system. Several times I have been on the supportive teams and those around you need bolstering too at times.

I wish I could come out and cook for you.

Kick this in the rear!!!

Suggesting an alternative is great for the private forum.  But really, what I have is working, I just need to be better about discipline.

Someone asked for deets on what I would like from a person if they came here

    - understand my program

    - understand my bucket of crazy

    - if you are a cook, perhaps help with a bit of that

    - help me with some discipline

Another thing being asked, and I thought it was asked rather tactfully in the first post:  please don't suggest a program that is different than the one I am on. The decision matrix is already overwhelming, and the key is that what I am doing IS working.  


A good way to put all this:  I did the very best on this program during the PTJ last year.  Good food and a lot of physical activity.  I suppose I am asking people to understand how that was so effective and to come here and help me emulate that.

Reminder to all the lovely, well-meaning folks who care about Paul (as well as all the others):

This is not a thread asking for your opinions or advice.  Those responses will be removed.

If it seems like you didn't even read the top post, those responses will be removed as well.

If you wanna talk to Paul about this stuff, there is a private forum for that.

If you want to start a thread called "What are all your best/wildest/weirdest ideas for fighting cancer?"  that must go in the Cider Press.

Questions about why we do stuff this way, as well as complaints about how cranky and picky I'm being can go in the Tinkering with this Site forum.

There is a little link in my signature that says "How Permies Works."  That would be an excellent place to start if this is all still just a bit perplexing.

Thanks for supporting Paul!  

Wow Paul had no idea you were dealing with all this!  Don't take offence, I will send prayers.
I spent last eight years as full-time caregiver to my wonderful parents.
Both passed last year.  a Humbling experience to watch parents who   brought me into the world leave the world.

I just Turned 66 this year.  I now need to focus on my heath and spiritual being.
After navigating the minefields of last 4 years, I came to realize that institutions I once trusted seemed to serve a different Master ($$).
All my doctors were unusually aggressive that I receive my latest J -abby.   I was labeled all sorts of things, most polite being Axe Hesitant.

My Own family was split over this, and I tried to warn.  Now almost everyone who complied are seriously immune compromised.
I know as we get older, we should expect to lose people we care about but now it is getting ridiculous.  

Right now, I will take Paul's advice and seek help of our community and choose more holistic and organic approach to my health.