Maybe Life is always like being on a trapeze or a tightrope at the circus...
Gardens in my mind never need water
Castles in the air never have a wet basement
Well made buildings are fractal -- equally intelligent design at every level of detail.
Bright sparks remind others that they too can dance
What I am looking for is looking for me too!
Moderator, Treatment Free Beekeepers group on Facebook.
https://www.facebook.com/groups/treatmentfreebeekeepers/
“Action on behalf of life transforms. Because the relationship between self and the world is reciprocal, it is not a question of first getting enlightened or saved and then acting. As we work to heal the earth, the earth heals us.” ~ Robin Wall Kimmerer
growing food and medicine, keeping chickens, heating with wood, learning the land
https://mywildwisconsin.org
Brody Ekberg wrote:I like to help and fix things and seeing her this miserable is very hard for me. But whenever I try to give advice she barks at me telling me I dont know how she feels and don’t know what she’s going through. And whenever I dont give advice I feel like I’m useless and not helpful in anyway.
“Action on behalf of life transforms. Because the relationship between self and the world is reciprocal, it is not a question of first getting enlightened or saved and then acting. As we work to heal the earth, the earth heals us.” ~ Robin Wall Kimmerer
Michael Cox wrote:
On another level, a good friend of mine is a lifelong insomniac. She fought it for years, but ended up simply giving in and is much happier for it. Typically she sleeps for a few hours in the evening, wakes for a bit after midnight. Where she would have used to stay in bed feeling frustrated and angry, she learned to get up and use the time. She did her laundry, household chores, played computer games etc... then went back to bed for a few hours before dawn. She was still tired, but less frustrated and angry. And eventually she also got the hang of having a strategic nap in the afternoon..
Invasive plants are Earth's way of insisting we notice her medicines. Stephen Herrod Buhner
Everyone learns what works by learning what doesn't work. Stephen Herrod Buhner
Pearl Sutton wrote:Brody: I feel for your wife, I'm in that kind of pain too. I do terrible things to my bed to attempt to make it not hurt. BUT what works for me will not be what works for her.
You say that you telling her isn't helping, she sounds like she's depressed (it's called situational depression, means it's VERY reality based reasons to be depressed) as well as lot of other imbalances in the body. And if you ask us for info, you may have more things to suggest to her, but she still will probably be resistant to the help.
My vote, as someone who has been there (and sometimes still IS there) is she needs professional help, which would leave you with the role of comforting husband. She needs that too. It rarely works to have a spouse do both. It just puts you in a bad place too, when she needs comforting, she feels nagged.
I don't know what she will consider useful help, personally I'd say a mix of good chiropractor, naturopath and neurologist. The body exhaustion and imbalances in her body would be in naturopath territory, a neurologist will probably want to do surgery, that may or may not be best, a chiro can possibly help keep it down to more tolerable. Neck damage is hellish, it's one of the most frustrating pains, as it affects the whole body.
I send you both good wishes....
Maybe Life is always like being on a trapeze or a tightrope at the circus...
Michael Cox wrote:As someone who usually does sleep well, but has suffered from bouts of insomnia, as well as back and muscular pain, I feel her.
On a physical level, I find daily yoga shortly before sleep helps a lot. Releasing the muscular tension before lying down helps me fall asleep faster, and I don't wake from the pain so early.
We also have a second "bed" in our room, for when I'm struggling. Changing to a different surface in the middle of the night helps. Our bed is probably a bit soft to be ideal, but switching to my buckwheat hull mattress on the floor does help me resettle during a bad night.
BUT all of these things are hard to face when you are already bone achingly weary.
The solution that worked for me once or twice when it got really bad was to see my doctor and get a short run (7 days) or prescription sleeping pills. A few nights of really solid sleep really helped me regain the energy needed to face making changes again.
____
On another level, a good friend of mine is a lifelong insomniac. She fought it for years, but ended up simply giving in and is much happier for it. Typically she sleeps for a few hours in the evening, wakes for a bit after midnight. Where she would have used to stay in bed feeling frustrated and angry, she learned to get up and use the time. She did her laundry, household chores, played computer games etc... then went back to bed for a few hours before dawn. She was still tired, but less frustrated and angry. And eventually she also got the hang of having a strategic nap in the afternoon.
Human beings are wildly varied, and some people are simply not suited to sleeping through the night. In our ancestors they would probably have been highly valued. SOMEONE has to feed the fire at 4am to stop the wolves attacking.
Maybe Life is always like being on a trapeze or a tightrope at the circus...
Gardens in my mind never need water
Castles in the air never have a wet basement
Well made buildings are fractal -- equally intelligent design at every level of detail.
Bright sparks remind others that they too can dance
What I am looking for is looking for me too!
Heather Sharpe wrote:Brody, my heart goes out to both of you. Not getting good rest is so hard, physically and emotionally. I know the feeling of being so tired of being tired all too well. I think Pearl is absolutely right that she needs professional help. Definitely sounds like depression could be at play here and perhaps some other issues. It would be helpful to see if there's something causing the difficulty. A doctor of osteopathy could be helpful (they tend to be less prescription happy), almost certainly a good therapist. I've had the best luck with a therapist that does somatic experiencing which is more focused on the body than traditional talk therapy, but that's such a personal thing.
I know you want to help her and it sounds like you have lots of good ideas, but if she isn't asking for advice, it's unlikely she will be able to hear you. Especially with as much distress as she's clearly in. I wonder if leading by example could be more effective? For example, you said you suggested stretching to her. What if you did a relaxing yoga class (online) before bed time and invited her to join you? Or maybe started drinking a magnesium supplement and talking about how great it makes you feel, maybe offer her some? I know those are both things that help me sleep better, so they're just examples. You could also try offering her a gentle massage before bed, maybe with some lavender oil or something, if you think she'd be open to it. My partner often does that for me, even if it's just massaging my face and scalp, it can send me off to sleep really quickly.
Here's a bedtime yoga class that really helps me, there are many others on this site, most all of them free. The same lady has some other really good bedtime ones if you look. It should be physically accessible for most, no crazy athletic or bendy stuff, just gentle stretching. https://www.doyogawithme.com/content/hatha-yoga-better-sleep
I hope y'all are able to figure out how to get her some good rest!
Maybe Life is always like being on a trapeze or a tightrope at the circus...
The only thing...more expensive than education is ignorance.~Ben Franklin
Lana Weldon wrote:
A lot is about brain chemistry and timing.
Some things that works for me, or have worked:
-avoid wireless, emf, smartphones, or at least restrict as much as possible
-grounding, being in nature and outdoors as much as possible
-sunlight
-for me veganism made things much worse. Eating reasonable quantities of high quality animal foods has helped me. Think paleo and nourishing foods.
-raw foods only in small quantities, i was a fruitarian/raw foodist for some time, and it made things much worse. Think of warming, grounding foods, stews, soups, home cooked foods.
-think adrenals: what is good for the adrenals in general?
-try to "exhaust" the brain, push one self and feel really tired. If I can't sleep in the night, I get up and read, even if I feel totally tired.
-food I avoid in the evening: tomatoes, big meals, anything sweet, too much carbs or any junk food. In the evening I like to slow down.
Maybe Life is always like being on a trapeze or a tightrope at the circus...
Kate Muller wrote:I feel for your wife. Chronic pain and everything that comes with it is so crushing to deal with. Some things I have learned in dealing with my own struggles with joint damage, trouble sleeping, and chronic pain struggles is relief is a moving target and it takes lots of little things to manage it to any level.
Getting professional medical help is worth doing but it usually is a mixed bag if it actually helps. My best advice is to get copies of any test results, test data if you can get it, and have someone go with her to the appointments to take notes on what the doctor tell her. This helps her not miss anything while she is not feeling well and most likely very frustrated. Document what meds they have her try and keep notes on the effectiveness and side effects. This is very helpful along with a good medical history and your own copies of test results when you move up the chain of specialists.
Some things I have found that help me manage day to day include:
Vitamin D3 supplements on top of being outside. I take them with vitamin C at the same time. My joint pain gets worse when my levels are low. My energy levels are even lower when my vitamin D levels are really low.
Potassium and magnesium supplements help with my muscle spasms, cramps, and dizziness
Epsom Salt baths right before bed help calm the pins and needle pain just enough so I can fall asleep for a few hours.
large gel ice packs get me through the day. I prefer the 11" x 17" size and I have at least 2 cold at any given time. This way I can stop what I am doing and chill down what hurts for 10 minutes and it helps.
Lists of all the little things I need to do each day so I can reference it in my brain fog and make sure I am not forgetting something. When I start slipping from my routines I go down hill fast.
I eat a low inflammatory diet. I cut out 28 common foods and food additives that gave me some sort of inflammation response, digestive trouble, or hives. I means it is a royal PITA to try and feed me. I batch cook and freeze meals in single serving containers so I have heat and eat meals on bad days. Figuring out what is inflammatory to her will take an elimination diet, time, and she will most likely need you to do the food prep and cooking to even figure it out when she needs to not eat.
For my crushing fatigue the only thing I have found that helps is Nicotinamide Mononucleotide (NMN) supplements along with Resveratrol supplements The NMN is expensive but it has made a difference in my day to day energy levels.
Maybe Life is always like being on a trapeze or a tightrope at the circus...
Lana Weldon wrote:And of course, any kind of stimulants, including alcohol, cacao or tea, should not be consumed late/in the evening.
Maybe Life is always like being on a trapeze or a tightrope at the circus...
Nick Williams wrote:I hate to be the "go to the doctor and get pills" guy, but go to the doctor and get the good sleepytime pills (trazadone or the like). It's not something you want to rely on long-term, but it's amazing how big of a difference just a few good nights sleep can make. Once she's made up some of the sleep debt, she'll likely be a lot more willing to make the effort towards physical therapy to deal with her muscular/skeletal issues.
Maybe Life is always like being on a trapeze or a tightrope at the circus...
Anne Miller wrote:
Michael Cox wrote:
On another level, a good friend of mine is a lifelong insomniac. She fought it for years, but ended up simply giving in and is much happier for it. Typically she sleeps for a few hours in the evening, wakes for a bit after midnight. Where she would have used to stay in bed feeling frustrated and angry, she learned to get up and use the time. She did her laundry, household chores, played computer games etc... then went back to bed for a few hours before dawn. She was still tired, but less frustrated and angry. And eventually she also got the hang of having a strategic nap in the afternoon..
This is exactly what I was going to say.
I had insomnia for about 20 years more or less. I made peace with it.
I never had trouble falling asleep though then I would wake up. So I got up, went to another room then read, watched TV, played on the computer, etc until I was sleepy. Then I went back to bed.
So for 20 years I only got about 4 hours of sleep a night and I functioned at work just fine. I doubt any knew that I had trouble sleeping.
I wish your wife the best and I hope she finds some releif.
Maybe Life is always like being on a trapeze or a tightrope at the circus...
Pearl Sutton wrote:Brody: Yup, I have had equally bad outcomes when I talk to neuros. You'd think there'd be a specialist for this kind of damage, it's very prevalent in this society.
And I have also given up no Western medicine. I see a naturopath and a chiro, both of whom help me a lot.
It's her depression that worries me, that'll keep her holding in a bad pattern. It's HARD HARD HARD to break out of depression long enough to get a toe hold. The naturopath needs to know about this, they have things that may help. I DON'T recommend anti depressant Western medical pills. Took me YEARS to get off them. I am still damaged from one, and I took the last one in 2011. There are natural ones, don't just guess or try random ones, get the naturopath to help, they all work differently, and the naturo will know more how to choose.
Maybe Life is always like being on a trapeze or a tightrope at the circus...
Debbie Ann wrote:Hi Brody,
It's so wonderful that so many people want to reach out and help you and your wife. It has restored my faith in humankind..... a little. It breaks our hearts to know that someone is suffering. They have given you lots of great advice and things to try. And any one of them could work!
I have just 2 suggestions that probably won't help but they are worth a try. You see, once upon a time I broke my back. It was pretty horrific. I was in so much pain that I wanted to die every second of every day for about 6 years. I couldn't walk or sit or stand. I won't go into all the details but my muscles became so tight that I couldn't turn my head to the right, I couldn't lift my arms above my shoulders and I couldn't rest my chin on my chest. I could barely move. My muscles were in a death grip. I found a half a dozen different things that eventually put me on the road to recovery. I needed them all.
But one of the first things that helped.... I bought an electric massager made by Homemedics. Using it is like getting a massage from a much younger Arnold Schwarzenegger. On low is was only so helpful but on high it made a big difference. In the beginning, the first few weeks, it hurt a lot and often felt like pins and needles. But it helped too. And a hand therapist explained why that was happening and I should only use it in the beginning for 4-5 minutes until the pins and needles stopped. It really helped to loosen up the muscles so that I could start to move again. It's only like $50 bucks.
And I generally refuse to take any kind of medications too! Especially when they are all made in China now or when the instructions say “Don't stop taking it without your doctors approval”. How scary is that? But I've had intermittent insomnia since I went through menopause 15 years ago. Tried lots of suggestions that didn't work. A few months ago I was walking down an aisle in the grocery store and saw the package of 'Unisome” on the shelf. Thought it was funny. That's been around since I was a kid! You know, when the dinosaurs were still around. Just for the hell of it I tried it. Took one before I went to bed and it seems to be helping! I'll be damned! Not addictive at all!
I hope you find something soon that works. I wish you all the best.
Maybe Life is always like being on a trapeze or a tightrope at the circus...
Carla Burke wrote:I've had great luck with herbs and acupuncture/TCM - better than anything, prescription or otc that I've tried. St.John's Wort is incredible for both pain relief and depression - especially the depression that comes with chronic pain. The trick with the acupuncturist is to find one who actually trained in China. Some insurance covers it, at least partially. My husband was hit from the rear, by a semi, about 23yrs ago. His neck and back grew progressively worse, until about 4yrs ago, we found an incredible TCM doctor, who happened to also have come to America to become a western medicine doctor - and quit practicing western medicine, shortly after getting that education, in favor of TCM. Her practice was only 3 miles from us, in the Chicago suburbs. After only one visit with her, John was able to turn his head, to look over his shoulder, and to twist at the waist, too - both are things he hadn't done since before he'd met me.
We then moved to a little town in Central Missouri, and found her American counterpart. A scientist who grew extremely disenchanted with the system, and took a few years to go to China, and learn TCM. She's different from our first - but she's damn good, and we're thrilled. I've had a lot of injuries - some really bad, plus lupus, Ehlers-Danlos(the base of a lot of my injuries), fibromyalgia, asthma, arthritis, and more - and both of these women have worked wonders in my mobility, sleep, and pain.
If you do a bit of research, you may be able to find one near enough to you to make it worth a shot.
Maybe Life is always like being on a trapeze or a tightrope at the circus...
Tereza Okava wrote:Brody, I feel for you and your wife. I've had that pain-insomnia and there is nothing like it, it colors your world and makes everything look just absolutely impossible.
I can totally see where your wife is coming from in terms of worrying about not wanting to get reliant on sleeping pills. I'm the same way with pain, I come from a family of people with substance abuse problems. But Nick does have a good point- if she can get a night of sleep out of it then maybe she will be able to see straight and figure out how to move forward. She's got you for support and they don't necessarily have to be addictive. She can try one and see how it goes. If there is something that offers a chance to make things slightly better, it's worth a shot, just like all the other good ideas people are throwing out here, and there are plenty of much more addictive things people use every day.
As for the rest, I agree- you are her support, that is what she needs from you, rather than you being the problem solver or the developer of new medical strategies (much as you want to fix things as soon as possible). She's an adult, can make her own choices, and you can support her in how she implements them. If she wants you to help her figure out how to rework her schedule if she wants to try a new sleep arrangment, or wants you to help her sort out finding a new doctor, then great, but in the meantime it's 'how can I make her day easier'. It's hard to see the people we love suffering but they have to make the change.
A last PS- I heartily second the acupuncture suggestion. I had it for a knee injury and then for anxiety and it was literally life changing. I hope you can find one around to try.
Maybe Life is always like being on a trapeze or a tightrope at the circus...
Brody Ekberg wrote: It will be a good learning experience for me too since Im not exactly the source of comfort shes looking for most of the time..... I definitely need to work on my comforting skills.
Anne Miller wrote:I had insomnia for about 20 years more or less. I made peace with it.
I never had trouble falling asleep though then I would wake up. So I got up, went to another room then read, watched TV, played on the computer, etc until I was sleepy. Then I went back to bed.
So for 20 years I only got about 4 hours of sleep a night and I functioned at work just fine. I doubt any knew that I had trouble sleeping.
I wish your wife the best and I hope she finds some relief.
Brody Ekberg wrote: "She WANTS to sleep well at night. She DOESNT WANT to take naps. She thinks that things shouldnt be that way. I have a hard time dealing with wants and not wants without being very blunt, but being very blunt turns the conversation ugly fast with her. Ive even told her that, if I didn’t work a full time day job, I would love to give segmented sleep a try. But, I sleep good at night and work all day so this isnt an option for me. And I explain to her the human history of segmented sleeping and she doesn’t want to hear it.
Invasive plants are Earth's way of insisting we notice her medicines. Stephen Herrod Buhner
Everyone learns what works by learning what doesn't work. Stephen Herrod Buhner
Brody Ekberg wrote:Very interesting! Now I’m bummed that I didn’t harvest any St Johns Wort this summer. I did several years ago but I sleep fine and am not depressed so I never used any. And my wife just wasnt really interested in anything herbal at the time so she didn’t use any either. I tossed it and haven’t picked more since, although it’s probably wise to keep some on hand always anyway.
My wife has looked into acupuncture before and expressed some interest but I’m not sure what really came of that. I know she hasn’t tried it yet. She has tried acupressure before and that helped at least somewhat. It’s similar to acupuncture in the process and goals, but different in the lack of needles and different placement of the pressure. From my understanding, acupuncture is like the “it works but we cant prove any of this” eastern technique where acupressure is the “it may or may not work but we think we can prove things” western technique. Same basic idea though.
I think there is a place about an hour from here that does acupuncture and also has a floatation tank. I dont know if they trained in China, but it’s probably the closest thing we have around here.
The only thing...more expensive than education is ignorance.~Ben Franklin
K Kaba wrote:I didn't see this suggested yet, and you mentioned watching something in the evenings. Swap out whatever you're watching for a couple Bob Ross episodes. The painter with the 'fro has an incredibly soothing voice.
Maybe Life is always like being on a trapeze or a tightrope at the circus...
Anne Miller wrote:
Brody, I will have to agree with your wife.
I feel that taking naps replaces the sleep that she would get that night, not the sleep that she lost the night before.
If she is in pain then that adds a degree that I did not have. Pain has never disrupted my sleep.
I found things that help my pain. My pain is from a skating accident when our daughter was just learning to skate so that was a long time ago.
I injured my knee and if it had happened today I feel that doctors would advise knee surgery. back then they stitch up the wound in an emergency room and sent me home with no advice. Even back then, though I might have decided against surgery.
After having dealt with knee pain for many years, I am amazed that after a few simple things, I no longer have knee pain.
I also feel to make things happen a person must have a positive attitude. I am a big self-help person. I look for ways to help myself.
I read books, try things I read about and find what works for me.
I don't go to doctors, chiropractors, or even take prescription meds unless I feel that they must be taken.
I take a medication for high blood pressure only because I know that is what is related to heart attacks.
I finally broke down and let the doctor prescribed a medicine for gout. I no longer take gout medicine and have not had an attack. There was a simple solution to this problem.
I am sure that all that I have said does not help your situation or your wife's . The point I am trying to make is that this is something a person must work out for themselves.
Seeing a mental health professional, of the right kind, might help your wife deal with her pain and sleeplessness. Sometimes just talking to someone makes a person feel better.
Maybe Life is always like being on a trapeze or a tightrope at the circus...
Carla Burke wrote:
Acupressure did help us, to a degree. But, acupuncture was substantially better - and far less painful - for both of us. If she'll drink herbal tea, or even try the capsules, you might be able to get her to take the St John's Wort, and it's not expensive to buy. I make herbal teas, all the time, and just keep them in the fridge. Capsules would probably be the easiest way, if she doesn't like the tea.
As far as the phone and other devices, many of them now come with a 'blue-blocker' setting, that drastically cuts the blue light emissions, allowing your body to more easily follow its normal circadian rhythms. I have mine set on both my phone and tablet, and there was a noticeable change for the better.
Maybe Life is always like being on a trapeze or a tightrope at the circus...
Fred Phillips wrote:Surprised no one has brought up melatonin yet. There is an ick factor because it was originally obtained from cow brains, but within the last 20 years or it has been found in most plants and animals; in humans 99% is made outside the pineal gland. It is an antioxidant, immune system regulator, anti-cancer agent, and yes, regulator of sleep cycles. Fascinating history here https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6481276/
That article is from 2019; since then it has come under fire for being a possible cheap covid drug. So I would not look for any objective information from Google, Wikipedia, or teaching hospitals. Look for earlier articles, or current sites that assert early covid can be treated in many ways.
Levels decrease with age so supplementation for immune health makes sense. A big dose can give gut-wrenching symptoms for days, so start small, 0.3mg and work up to 3 or 5 mg. FLCCC protocol has 6-12mg for hospitalized covid patients. Some ICUs give much more than that. There seems to be no established toxic dose.
I take anywhere from 3 to 25 mg when I need to sleep but don't feel drowsy. If nothing else it calms my thinking and stops tossing and turning. The higher dose is for when you want colorful dreams :)
Maybe Life is always like being on a trapeze or a tightrope at the circus...
Heather Sharpe wrote:
Brody Ekberg wrote:I like to help and fix things and seeing her this miserable is very hard for me. But whenever I try to give advice she barks at me telling me I dont know how she feels and don’t know what she’s going through. And whenever I dont give advice I feel like I’m useless and not helpful in anyway.
I totally get this temptation. But giving advice is probably only going to make her more upset, as you have seen. And make you feel unappreciated when she doesn't want it. I suspect what she really needs is for you to empathize with her experience. She probably feels really alone and like no one gets it, so feeling with her is one of the most helpful things you can do. "That sounds really hard (insert other feeling words here)." is a great place to start. Be careful to avoid sympathy, which is quite different and not very connecting.
I know it probably feels like this, but try to see past the nail, as it were, to the feelings she's having about it. Helping her feel understood and cared about is probably the most useful thing you can do for her.
If empathy is challenging for you (most of us don't have great models for how to do it, but it's a skill that can be learned), this might be a good practice to try. Also, this guy is just phenomenal for relationship stuff in general. https://www.johnwineland.com/blog/intentional-dialouge-video
The short version is:
Listen. Don't interrupt.
Reflect back what she said "What I heard you say is...."
Ask if you got it "Did I get that correct? Did I miss anything? Is there anything else?"
Offer empathy. "I can see why you would feel...." Try to expand on what she said, drop into her heart, use feeling words.
If applicable, using the magic words, "That makes sense" in response to what she's feeling, even if you don't agree or it doesn't make sense to you can be well, magic.
It sounds like you really want to express care through practical steps to fix it and that makes sense. I think you will find much greater success and harmony if you can just offer her empathy. It's possible once she feels seen, she may be more open to advice and help, but she might not be. And that is okay.
Maybe Life is always like being on a trapeze or a tightrope at the circus...
Brody Ekberg wrote:
Its the tv itself that is the issue. The bright light disrupts the brain’s natural sleep cycles. My wife likes tv and I despise it, but the only times I actually sit down in the living room is in the evenings to stretch a bit and wind down before bed. She likes to take that opportunity to enjoy a show together, which is understandable. But I think the tv itself is one of the factors that might cause her to wake up easily in the middle of the night. The nice natural cycles get a wrench shoved into them from all the bright unnatural light.
Invasive plants are Earth's way of insisting we notice her medicines. Stephen Herrod Buhner
Everyone learns what works by learning what doesn't work. Stephen Herrod Buhner
Brody Ekberg wrote:I just watched that little video and laughed because of how accurately it portrays me trying to have a conversation with wife about these issues. Its like we’re on two completely different pages. And I feel like ignoring the nail is obviously the least helpful, most complicated and unnecessary way about the ordeal. But clearly, blaming the nail isn’t working either so maybe its time I try the approach that seems so absurd!
Happiness is not a goal ... it's a by-product of a life well lived - Eleanor Roosevelt. Tiny ad:
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