Jake Milner wrote: The one thing I was not prepared for was a nervous breakdown
My mood began swinging more often. I felt edgy and too in tune with nature. Super hearing. Some tinnitus on and off. I am naturally anxious which is what has helped me be such an attentive person. But I did not realize the implications at the time. My new lifestyle was actually pushing me closer to an edge I was already not far from. I began feeling tingles 24/7 in various parts of the body. And one day in town I got hit with vertigo for the first time. To make a long story short, I spent nearly a year in and out of ERs, dr offices, getting MRIs, blood tests, scans, ultrasounds, etc. They couldnt find anything
But I later found some info online about how anxious people end up trapped in fight or flight mode. In a hyper state. Where the body does all kinds of weird stuff. It was destroying me little by little until I learned to get rid of it.
The autonomic nervous system regulates all body processes that occur automatically, such as heart rate, blood pressure, breathing, and digestion. To compensate for stretchy blood vessels and increased venous pooling (too much blood collecting in over-stretched veins) most people with hypermobility appear to make extra adrenaline, which may account for the high-energy, always-on-the-go lifestyles of many hypermobile people. Unfortunately, if you get too tired, your body responds by making more adrenaline, so you keep going, not realizing how tired you really are. It appears that as you get more and more run down, your body gets more sensitive to adrenaline, so the small amount you have left can produce the same response a larger amount used to, so you still don’t feel tired even when you are. Even when you do feel tired, you may continue to “push through” the fatigue, collapsing when the adrenaline wears off. Years of not feeling, ignoring, or pushing through fatigue may be one factor in the development of illnesses like chronic fatigue syndrome.
Because of their role in stabilizing the trunk and the head, the neck and lower back are almost always affected. Chronic neck strain affects nearly every patient with JHS for two main reasons. First, the ligaments that are supposed to support the head are too loose and therefore cannot do their job well. The muscles of the neck are forced to do more of the work of supporting the head than they are meant to do, so they become strained. Second, most JHS patients have shoulders that are too loose, that is the “ball” of the upper arm is not held tightly in the “socket” of the shoulder. Because of the weakness of the shoulders, almost any activity that uses the arm, including reaching, pushing, pulling, and carrying, pulls not only on the shoulder but also on the neck. For these two reasons, neck muscles are constantly being strained, and what little healing may occur overnight is promptly undone the next day. Remarkably, this process occurs so gradually that many people with JHS do not even notice it, and when asked they may say, “My neck is fine,” when in fact their necks are a mass of knotted soft tissue, soft tissue that does not feel soft at all!
Tereza Okava wrote:(thanks for that document BTW, I am so thankful to be able to tell my kid what to keep an eye on rather than her have to find it all out on her own). Wasn`t aware of the excessive response, it all makes sense.
Although there is no research that has looked at the prevalence of generalized joint hypermobility (GJH) in autistic children, anecdotal evidence suggests that it is a fairly common feature.
@Jennifer, high-5 crocheter. I also knit and crochet, I read somewhere that you get the same hormone response when doing handwork as you do when petting a an animal. Not sure how true that is, but it relaxes me, and it is how I get through car trips driving here on crazy roads in Bananaland, otherwise I`d be clinging to the roof of the car.
When all four tires fall off your canoe, how many tiny ads does it take to build a doghouse?
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