James Freyr wrote:I have this too and have had it since childhood. It showed up the day I woke up one morning deaf in one ear from mumps having caused nerve damage. My ear works fine, no signal gets to my brain. I think I was eight or nine years old. For me it's just become part of the background and I largely don't notice it, maybe because it started when I was so young and just grew up with it. I remember it being very distracting when it first arrived, but this happened over thirty years ago. I also notice it's louder if I have a fever. Mine sounds exactly as you describe it Deb, that very high Khz tone very much like the tone an old tube tv or monitor makes when it's on. Every once in awhile at random, and it's occurrence is very sparse thankfully, the tone will instantly get very loud and then over about 10-20 seconds it fades back to normal volume, like striking a cymbal.
Being deaf in one ear has made for interesting situations like sitting at my old bar watching a ball game and a stranger is talking to me and I don't know it. The stranger eventually says something to the bartender like "man that guy's a dick. I've been trying to talk to him and he ignores me" to which my bartender replies "oh, he's actually a nice guy he's just deaf in one ear". Another time, at the same bar, a girl was talking to me and she eventually nudged my arm and I looked over and she sneeringly said "what are you?! deaf?!" to which I replied "actually I am. This would be a good time for you to insert foot in mouth". She got up and left.
I don't know how to compare my tinntinitus to others, I'm sure it varies widely in tone hertz and volume, but for the most part I don't notice mine on a day to day basis.
Jese Anderson wrote:Judith,
The ones at Sam's club are actually pretty high-end and less than you'd pay elsewhere. They still set a person back $4K-$5K. Mine are bluetooth compatible (cell phone can be routed through them) and 4 levels of volume control. Plus they have 3 settings that you can tailor/set up. My settings are "Adro" (which is the normal setting), "Noisy" and "Music". Adro is what it is typically set to and if I am in a crowded noisy area I can set it to "Noisy" and the background noise will be filtered out but I can still hear those around me in normal conversation. I've been flat-picking acoustic guitar for around 30 years and I play with some guys from time to time (Hippie grass, Bluegrass, Americana, Fiddle Tunes, etc) and the "Music" setting tones it own a bit but I am still able to hear each individual instrument and their part.
They can adjust them the way one likes. I think it took 3 trips to finally get mine dialed in to where I wanted them. My wife has good hearing so I would compare things to her hearing. When she'd hear something she'd simply ask if could hear it and vice versa. It took awhile and we finally got the hearing aides dialed in.
My wife nearly cried when we decided to buy them. We have 2 young children and it was creating a problem that I was oblivious to. My youngest's (son - 10 at the time) speech was driving me crazy. I'd say things about his pronunciation of words and I was sure he had a speech defect when saying words with "th" in it. Same goes for the "r" sound. Come to find out with my hearing loss those were labeled as the first sounds in speech to be missing in my hearing loss.
Deb Rebel wrote:...otherwise known as tinntinitus... I have this and so does my spouse...