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the best thing for me in fighting cancer: community

 
author and steward
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Gerald Anderson wrote:How much does your anti cancer program cost? Is there a web page where I can get a general idea of the "cooks'" dietary program?



I am concerned that if I mention one spec of the food program here, it will start a war.  

I have looked through the posts in this thread that the staff have deleted.  There are a lot of posts insisting on vegan and a lot insisting on carnivore.  And we have seen "food wars" on this site way too often.

In the private forum, I spell it out very clearly.  And still people are suggesting foods that are off-program.  It takes a while to get used to.
 
paul wheaton
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Anybody here use Compuserve in the 80s?

The conversation that happened there was amazing.  It cost $12.50 per hour to access.  That's about $30 per hour with today's money.  Imagine an online service today that would cost $30 per hour to access.  

I paid it.  Worth it to me.  Worth it to millions of people.  And I still think about the quality of conversation then and compare it to the free social media sites today.  I think about it a lot when making moderation decisions here on permies.  

So access to the private forum is $25.  I don't see another way around this considering all the comedy around the c-word.  



 
pollinator
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paul wheaton wrote:

I like the idea that 20 people show up next week.  Lots happens.  All of my stuff is on rails.  

Months later Tommy is gone, and there are still 20 people here helping each other with heath stuff.  

Years later it is still going.  Our gardens are massive.  Our values are even better.  Our community is spectacular.



That's right. Focus on the big C: community!

Sorry to hear about Tommy. Glad you're on the right track. I'm not a great cook myself, and can't travel right now, but you have my prayers and good wishes, Paul.

And since I did read the first post completely I'm not recommending a thing in the way of treatments or changes. Just...laugh as often as you can. Laughter is good for all of us.
 
pollinator
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I don't think this goes against the idea of not giving advice on what to eat or not eat or what have you, because it probably fits in with any other things you are already doing.  You may be doing it already.  Many people find fasting to be beneficial for all sorts of issues.  
 
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Wow, you are in the middle of a great success story. It sounds to me that your game has been upped.
 
pioneer
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Now that I re-read the thread, I'm 99% sure that I know what the diet that Paul is on is. I'm on it too. It is probably the most likely diet/health program to start a war. People freak out when they hear it! The information is available for free "out there", but you have to know where to look. For instance, connecting the dots between studies about side effects of specific pharmaceuticals and looking at the phytochemicals that those drugs are related to. This leads to some pretty mind-blowing conclusions.
 
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I almost completely forgot, a lot of people are positing that signs of cancers can actually derive from parasite infections.  Black walnut tincture is known to help with parasite cleanse and I'm sure many other natural elements can help as well.

I'm a firm believer that with enough nutrients and detox, the body knows what to do automatically.  Hope is the most important aspect, I always try to instill hope, there's always a way!
 
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Greetings Paul, it is definitely not easy to get and hear those words.  I applaud you for speaking out in such a vulnerable moment.  As a word of encouragement my brother-in-law went through this with his mother.  The docs gave her six months to live (very large tumor in her abdomen) and she beat it with a plant based diet.  She ate tons and tons of greens, no chemo either through diet alone and she's still with us over twenty years later.  Will be praying for ya, keep up the fight!

Blessings...Hugh
 
pollinator
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I hear you , Paul, saying that you don't want on need folks to steer you. Instead you want support as you continue to go the direction you have chosen. That it's working well but could be better if you can have more people walk side by side with you. And that argumentative powerful buzzards don't help you fight through this tough stuff right now. Of course, you don't have the extra time and energy to deal with the distractions and distress those kinds provide.
I am clapping and cheering! You are explaining well what you need and want. Although I can't come their. I'm praying just the right folks hear your description and respond. That they may not only support you in your struggle but build a net for others to keep each other on the road to health.
So glad that even in this rather dark time you are thinking of how you can help others who are or will have similar struggles. Holding you up often through the day and night of this affliction as you share the hope that you have.
 
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Hi Paul,
Glad you are on the right track. The reason I've been on your team all of these years is because you are making the world a better place. Thank you for doing that.
John S
PDX OR
 
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Paul,

I don’t post a lot on this forum, but I greatly appreciate the work you do, and the community you’ve fostered here.

I myself am now 6.5 years post my initial cancer diagnosis. I did have a surgery, and embarked on a wide-ranging exploration which turned into a life-transforming adventure of healing & wholing. It’s been full of ups and downs. It’s been working for me - there’s been no tumors at all in the scans since the initial surgery. And I am healthier and more whole as a person than before.

It seems that you have found a good path for yourself, well supported by this community.  I wish you full healing & wholing in this process.

If you would ever like to chat, swap war stories, or triangulate methods with someone who’s also been in the same trenches, message me and I’d be more than happy to connect.

-Bing Cheah
Wildsong Gaian Sanctuary
 
gardener
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I had no idea that you were struggling with this, Paul.  It is great that you are reaching out for support.

                   *This!*


Bethany Brown wrote:Wow, you are in the middle of a great success story. It sounds to me that your game has been upped.


                             
***************************************


You have already beat this.  Just don't give it a second chance.  All the strength on staying the course, Captain.
 
pollinator
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My two older sisters died of leukemia in their early 20s, also a genetic cancer. They sought chemotherapy since it was the only option offered. I also think that being in your early 20s means that, for most, "you've gotta use the big guns because you're so young!"

It didn't work and I miss them dearly. I long ago decided that it's not how I would handle it if I also developed the genetic leukemia they had, or any other cancer for that matter.

Cancer is so sticky emotionally, and I commend you for sticking to your values in this effort. I think that cancer is best treated in the garden, regardless of if you are "living with cancer" or "dying of cancer." My sisters never got the chance to "live with cancer." Treatments kept them in the dying pattern.

May you live and grow your way out of it. Blessing upon blessings to you, Paul.
 
pollinator
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Sorry to hear about this Paul! I am hoping for many reasons your approach continues to be successful, and I respect your putting your beliefs in action when it matters most. I have a family member who everyone would have thought was the healthiest person we know who discovered multiple forms of cancer a little over a year ago. They are only in their late 30’s and a lifelong a runner, and dancer, and vegetarian who eats almost entirely organic, so it was a shock to say the least. I do not think it’s my place to tell anyone how to treat themselves, but this made it seem nearly impossible to advocate for more natural methods similar to what I imagine you are trying because they already lived a much healthier lifestyle than I do in many ways. They seem to be getting better now, but are on the back end of some horrifically painful treatment measures that are considered cutting edge with some of the world’s  foremost doctors. So I hope your treatment proves so successful as to help many safely avoid this path, and to help allow you to continue your valuable work!
 
paul wheaton
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The fact that I am beating it shows that while "because genetics" could be true, i think it, at the very least, is "genetics + food choices + environment".  

If I were traveling this path ten years ago, there would never be a tommy - despite genetics.  



At the PTJ last year, I did really good.  At the same time, I would attend all the meals with everybody, but not eat what they were eating.  Instead, I would eat my stuff at a different time.   Now that I can see some success, I am thinking that maybe we should offer at least a little change.

I lost 120 pounds and a lot of other health things cleared up.  I thought I was eating quite healthy before, but apparently not.

A woman was here during the garden master course this last january.  It is clear that she struggled with acne.  She ate my food a couple of times and nearly eliminated her acne in just a day or two.



I think it might be cool if a half dozen people wanted to come here at the same time and eat the way I eat now, and see if it solves other stuff.
 
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paul wheaton wrote: The fact that I am beating it shows that while "because genetics" could be true, i think it, at the very least, is "genetics + food choices + environment".  
........

I think it might be cool if a half dozen people wanted to come here at the same time and eat the way I eat now, and see if it solves other stuff.



Actually, that sounds like a project/program that might be a great side-gig at Wheaton Labs.  Look across the calendar at various events throughout the year and during the slower times, perhaps schedule a two-week (would that be long enough to see effects?) retreat where visitors could participate in some Permies projects as well as planning/preparing and discussing the meals being eaten.....meals based on your current recovery plan. Such a 'meal-directed' retreat might reveal great 'buzz' about reducing all kinds of maladies that individuals have that they would be surprised are diet related.

Finally, joining the others, Paul, on wishing you a strong recovery and continued immersion in your dream projects there at Wheaton Labs.
 
master gardener
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Timothy Norton wrote:There is a lot that comes with 'hot-button' topics, especially when it effects those who we care deeply for.

As staff, I want to remind everyone replying to please respect Permie's Publishing Standards and abide by them.

Thank you for your collective understanding.



This still stands.

If you want to talk about this topic please consider supporting Paul and getting access to the forum.
 
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Three members of my family got the big ‘C’. If I had the knowledge then that I do now I would have introduced them to this fun guy I know who collects turkey tail feathers. It may not have been the complete answer but it wouldn’t hurt I believe.
 
gardener
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Hi everyone, I'm still wondering how to get past de paywall to join in the discussion, since the paywall gatekeeper dislikes peoples outside the US.
Would love to find a good way to join in!

Perma-greetings,
Nina
 
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Nina Surya wrote:the paywall gatekeeper dislikes peoples outside the US.


It might be best to post in this thread about getting support for this purchase or to start a thread about the problem you're having in the Tinkering With This Site forum where it can get more undivided attention.
 
Candace Williams
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Sounds like it would be good, better and maybe even excellent to offer,"Paul's choice" whenever there is an opportunity to do so. Since it's helping you and helped one other person, let the option help others who are willing to give it a try!!
It seems logical that it also could help you to not be isolated by needing to watch others eat and then go away and eat separately. That separation could be kind of lonely and also kind of impractical. Eating with others can perk your spirits. Try it!! I say!!
 
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Best wishes Paul. You’ll be in my prayers.
 
gardener
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A song :

 
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Thank you for sharing this publicly, and thank you to Permies staff for moderating. I imagine it’s bait for trolls and not easy to share, but it can also help people with cancer. It’s inspiring that you’ve achieved so much progress, and I hope that Tommy will soon be completely gone.
 
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